Young adults are often establishing their own identities at this time and developing their own social, emotional, and financial independence. Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychosocial (psychological and social)problems associated with the illness. Epub ahead of print. Patients who have a high level of distress when they are diagnosed with cancer are more likely to have continued high levels of distress after their diagnosis. Subjects were 259 patients and 259 patients’ spouses and all cancer types were selected. Specifically, the 60 items were classified into the following subcategories: “difficulty in performing activities of daily living,” “difficulty in seeking expert advice on the disease state and treatment,” “complaints with health care providers,” “lack of information on treatment and disease state,” “lack of information on self-care,” “conflict over family relationships,” “concerns for family members,” “difficulty in planning life,” “conflict over relationships with non-family members,” “difficulty in adapting to changes in the social environment,” “lack of local support services,” “difficulty in solving work-related issues,” “difficulty in making financial arrangements,” and “lack of information on welfare services available during treatment.” The α coefficients for the internal consistency of the subcategories are shown in Table 1. Third, an analysis of non-responder or cancer patients who did not experience social difficulties is key to gaining information about a possible sample bias that might impact study results. A number of oncology-specific questionnaires have been developed encompassing aspects of social assessment including the 59-item Cancer Rehabilitation Evaluation System short form (CARES-SF) Schag and Heinrich, 1991), the 61 … Consequently, patients often face problems in various aspects of social life, such as family … 1 in 2 people will develop some form of cancer during their lifetime. Major depression is defined as at least five of the following symptoms for two weeks o… (in Japanese), Kawakita J. Zoku Hassoho [Aboduction: part two]. Cancer is a condition where cells in a specific part of the body grow and reproduce uncontrollably. The present study aimed to identify cancer-associated social problems from the perspectives of both patients and their spouses and to compare and analyze differences in their problems. We investigated the social difficulties of cancer patients and patients’ spouses. This paper presents a psychometric analysis of the Problems Checklist with a view to assessing its usefulness as a screening tool for social problems in oncology. Tokyo: Chuokoron-Shinsha; 1967. volume 17, Article number: 83 (2018) Li Q, Loke AY. Social and Emotional Side Effects of Cancer It's not uncommon for cancer patients to face a mix of emotions and adjustment issues. Thus, the present study aimed to investigate the degree of social difficulties experienced by cancer patients and their spouses, to identify cancer-associated social problems from the perspectives of both patients and their spouses, and to compare and analyze differences in their problems. This was a cross-sectional internet-based study. OBJECTIVE: Little is known about the social problems experienced by cancer patients in non-Western countries. CAS  Takeuchi, T., Ichikura, K., Amano, K. et al. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. Support Care Cancer. When the patients and spouses were matched based on the propensity scores calculated from logistic regression models, 259 subjects were selected from each of the patient and spouse groups (Fig. Health care providers should show sufficient concern for both patients and their spouses, particularly young and female spouses. Cancer does not choose its patients. That is why we prepared the scale using the KJ method and confirmed the reliability with an α coefficient. and you may need to create a new Wiley Online Library account. Social problems are common and important to cancer patients. Spouse caregivers provide the most extensive and comprehensive care, maintain the caregiver role longer, tolerate greater levels of disability than other caregivers, and experience more severe lifestyle adjustments [11]. Rhee YS, Yun YH, Park S, et al. ).” Patients and partners are interdependent in that cancer impacts on their shared life, both emotionally and practically. Finally, scores on each subcategory were calculated by dividing the total score by the number of items in each subcategory. The significance level was set at 5%. The checklist is a useful tool for highlighting problems. Most humans are the best they can be. Dapueto JJ, Servente L, Francolino C, Hahn EA. Hisamura K, Matsushima E, Tsukayama S, et al. (in Japanese), Kawakita J. Hassoho [Aboduction]. [25] attributed this to the fact that women caregivers are positioned as all-encompassing expert careers, expected to be competent at decision-making, a range of physical caring tasks, and provision of emotional support for the person with cancer. Men caregivers positioned caring as a competency task which they had mastered, and which provided them with satisfaction. https://doi.org/10.1186/s12904-018-0338-9, DOI: https://doi.org/10.1186/s12904-018-0338-9. This may be due to lack of a suitable questionnaire. Terms and Conditions, As cancer clinics are busy, social problems assessment would have to meet requirements of brevity, simplicity, relevance, practical utility and ease of scoring. 2008;17:606–11. PubMed  Evaluating an holistic assessment tool for palliative care practice. Second, because of arrangements for this study and funding issues, several years passed between the patient and spouse surveys, and we were unable to collect data from patient-and-spouse pairs. Some might also be starting families of their own. Cite this article. Correspondence to The datasets used and/or analyzed during the current study are available from the corresponding author on reasonable request. During treatment, patients and their families tend to focus on the daily aspects of getting through it and beating the cance… RSS | open access RSS. Data reliability is limited by the facts that the participants in these surveys determined whether they met the eligibility criteria and that data on diagnosis, treatment regimens, etc., were self-reported. These effects are magnified in the presence of any psychological and social stressors that predate the onset of … However, we assume that the degree of “difficulty in seeking expert advice on the disease state and treatment” in the spouses was as high as that in the patients because spouses were greatly involved in treatment of patients soon after diagnosis. 21,25 These conditions are often not detected by health professionals. However, no conclusion has been reached on whose distress is more severe because there are conflicting reports. © 2021 BioMed Central Ltd unless otherwise stated. Article  Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. PubMed  Soc Sci Med. Just under half (48.9%) of patients had adequate social support, 51.1% poor social support (Table 2). Learn more. “Our role is to help patients think through the impacts of their diagnosis, … Continued This paper presents a psychometric analysis of the Problems Checklist with a view to assessing its … This may be due to lack of a suitable questionnaire. To use the 60 items for the spouse survey, the word “you” was replaced with “the patient,” and “your family” with “you.” For both the patient and spouse surveys, the options, “It has never been difficult,” “I do not know,” and “not applicable,” were combined as “It has never been difficult,” and the survey results were statistically analyzed as those of a four-choice survey: “It has never been difficult (0 points),” “It has not been very difficult (1 point),” “It has been fairly difficult (2 points),” and “It has been very difficult (3 points).” Furthermore, in the present study, these 60 items were first classified by the Jiro Kawakita (KJ) method (Affinity Diagram). Cancer is now the biggest cause of mortality worldwide. 2017;17:82. I don't expect a whole lot from people; so, I don't get as disappointed. This may be due to lack of a suitable questionnaire. Specifically, the cancer patients were asked to answer multiple-choice questions on their sex, age, the presence or absence of recurrence, cancer sites, treatment, treatment regimens, state of treatment, academic background, and occupation. However, a merit of an internet-based survey is that it guarantees anonymity and allows participants to respond without worrying about health care providers. 4.4 CiteScore. Distress screening in the clinical environment can be used to detect persons who may benefit from additional emotional support. Section of Psychiatry and Behavioral Sciences, Graduate School of Medical and Dental Sciences, Tokyo Medical and Dental University, 1-5-45 Yushima, Bunkyo-ku, Tokyo, 113-8519, Japan, Section of Liaison Psychiatry and Palliative Medicine, Graduate School of Medical and Dental Sciences, Tokyo Medical and Dental University, Tokyo, Japan, Kanako Ichikura, Kanako Amano & Wakana Takeshita, Graduate School of Human Sciences, Waseda University, Saitama, Japan, Department of Medical Oncology, Kanazawa Medical University, Ishikawa, Japan, Department of Health Science, School of Allied Health Sciences, Kitasato University, Kanagawa, Japan, You can also search for this author in Tokyo: Chuokoron-Shinsha; 1970. The Cancer Support Community did a study in late 2016 to explore this question and found that people with cancer face challenges with costs and delays in health care. As a tool for screening for social problems it has some limitations. Social support has been found to be empirically related to influencing health outcomes. Fourteen items were well endorsed. Thus, in future studies, patient-and-spouse pairs need to be targeted and surveyed around the same time. Teens are often establishing their own identities at this time and developing social, emotional, and financial independence. 2005;60:1–12. Second, differences in the degree of social difficulties experienced by the patient and spouse group were analyzed by independent two-sample t-tests. Consequently, patients often face problems in various aspects of social life, such as family life, relationships with people around them, work, income, leisure activities, and relationships with health care providers [1,2,3,4,5]. Mentioning: 6 - Diagnosis of and treatment for cancer may not only create physical and emotional difficulties for patients but may also have an impact on social aspects of patients' lives. 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